Tuesday, April 15, 2014
Post-dinner Family Time
Sunday, April 13, 2014
Dr. Brown's - miracle bottle!!!!
To start off with, thank you all for your immediate prayers! Last week was a bit emotional. When we went in for his 4 month check-up, he hadn't really gained any weight in the past month. I immediately knew we were in for another round of tests or something.
Luke was weighed again last week, but had only gained 2 ounces in 5 days. Our doctor called that evening and explained that she was putting in a referral to see the endocrinologist over at SLP. They then put in for more blood work. This time they need 5 test tubes worth!!!! This means 3 different blood draws. We went in for our first blood draw on Friday and had success on the first poke! Hallelujah!! I told the lab tech, Anna, that we would call and specifically ask for her next time!
Our doctor called this morning and said that the first round of tests came back normal. They were testing his thyroid, glucose, and hormone levels. I'm not exactly sure what all is a part of the next round of tests, but we are happy that the first ones came back fine.
As far as eating is concerned, my mom's friend Barb (who is a nurse down at Children's), recommended Dr. Brown's bottles. So far, it's been a miracle bottle! He can down 4 ounces in a record time of around 15 minutes. This process use to take 45 minutes at least and he would never finish a bottle. At the moment, we are mixing formula and breast milk together to make a higher calorie bottle. Time to bulk up Lukey Poo!!
God has really answered our specific prayers, for Luke to start eating well. Meal time is much more enjoyable for all us, as he happily sucks down his bottle! We have our endocrinology appointment next Wednesday and we will also weigh Luke at this time. His last weight was 8 lbs. 6 oz. At this pace, he'll be able to stay in his infant car seat until he is 2!! :)
Everyone, thank you again for your prayers for strength! We are constantly reminded of God's love and the love of our friends and family around us. Thank you!
The MN Juliens
Luke was weighed again last week, but had only gained 2 ounces in 5 days. Our doctor called that evening and explained that she was putting in a referral to see the endocrinologist over at SLP. They then put in for more blood work. This time they need 5 test tubes worth!!!! This means 3 different blood draws. We went in for our first blood draw on Friday and had success on the first poke! Hallelujah!! I told the lab tech, Anna, that we would call and specifically ask for her next time!
Our doctor called this morning and said that the first round of tests came back normal. They were testing his thyroid, glucose, and hormone levels. I'm not exactly sure what all is a part of the next round of tests, but we are happy that the first ones came back fine.
As far as eating is concerned, my mom's friend Barb (who is a nurse down at Children's), recommended Dr. Brown's bottles. So far, it's been a miracle bottle! He can down 4 ounces in a record time of around 15 minutes. This process use to take 45 minutes at least and he would never finish a bottle. At the moment, we are mixing formula and breast milk together to make a higher calorie bottle. Time to bulk up Lukey Poo!!
God has really answered our specific prayers, for Luke to start eating well. Meal time is much more enjoyable for all us, as he happily sucks down his bottle! We have our endocrinology appointment next Wednesday and we will also weigh Luke at this time. His last weight was 8 lbs. 6 oz. At this pace, he'll be able to stay in his infant car seat until he is 2!! :)
Everyone, thank you again for your prayers for strength! We are constantly reminded of God's love and the love of our friends and family around us. Thank you!
The MN Juliens
Wednesday, April 09, 2014
Prayer request
We just got off the phone with our doctor. Little Luke is really struggling to gain weight, and it's causing concern for all of us. He's plateaued on his weight. We've started adding formula to breast-milk bottles and have started topping him off after he is finished breastfeeding. Problem is, he is a really bad bottle feeder. The doctor tonight said we might try JUST feeding by bottle for a day so we could see how much he actually gets. I'd hate to do that because I know he will not get enough!
The plan for know is to check his weight again next week, but if he hasn't gained weight, then we'll have to look at other options. I'm scared at what they'll want to do. I really appreciate your immediate prayers. Prayers that he feeds really well and that he gains weight! Thank you!
The plan for know is to check his weight again next week, but if he hasn't gained weight, then we'll have to look at other options. I'm scared at what they'll want to do. I really appreciate your immediate prayers. Prayers that he feeds really well and that he gains weight! Thank you!
Snow & getting ready for Easter
Thursday, April 03, 2014
Some pics
Wednesday, April 02, 2014
Luke's 4 month check-up
Luke and I just visited Dr. Benson this morning for his 4 month well-child check-up. AGAIN, he was sleeping! Man, he can't catch a break. He has been deep in slumber for every well-child visit he's been to. At least our nurse got to see him awake and active. Someone there believes me that he opens his eyes!
Luke has grown in length and his head circumference, but is making minimal weight gain. He has hardly gained anything in the past 3 weeks. Not good! We decided on 2 things to try: put in an extra feeding throughout the day and giving him one of his feedings by bottle with some high calorie formula mixed in as well. He is still only 8 lbs. 5 oz.
Going to Luke's check-ups have become a really anxiety filled and stressful event for me. I remember with Addie and James, it was a no-brainer. When I go with Luke, it seems like everything is already going against him, and then he does things like, sleep through his entire exam. Seriously, you can't make it up!
I know that Luke has many more ups and downs to come, and it is a wait and see game. But it feels so SAFE at home, and so uncertain when we go visit the doctor. I really need to ask God to continually give me peace when we visit the doctor, and to let go of trying to stay in-control.
On a side note, Addie and James are fighting over who gets to feed Luke his bottles. Tonight was classic to watch. Luke doesn't starve for attention that's for sure. :)
Lots of love, The MN Juliens
Luke has grown in length and his head circumference, but is making minimal weight gain. He has hardly gained anything in the past 3 weeks. Not good! We decided on 2 things to try: put in an extra feeding throughout the day and giving him one of his feedings by bottle with some high calorie formula mixed in as well. He is still only 8 lbs. 5 oz.
Going to Luke's check-ups have become a really anxiety filled and stressful event for me. I remember with Addie and James, it was a no-brainer. When I go with Luke, it seems like everything is already going against him, and then he does things like, sleep through his entire exam. Seriously, you can't make it up!
I know that Luke has many more ups and downs to come, and it is a wait and see game. But it feels so SAFE at home, and so uncertain when we go visit the doctor. I really need to ask God to continually give me peace when we visit the doctor, and to let go of trying to stay in-control.
On a side note, Addie and James are fighting over who gets to feed Luke his bottles. Tonight was classic to watch. Luke doesn't starve for attention that's for sure. :)
Lots of love, The MN Juliens
Thursday, March 27, 2014
Luke - PT and ears
Physical Therapy:
Luke had his first day of physical therapy down at Children's West in Minnetonka. Our PT is wonderful and she gave us lots of helpful activities and stretches to focus on with little Luke. Her main concern/focus is his neck. She said that due to him preferring the backwards C position the first 2 months of his life, his neck muscles are completely stretched out. He really doesn't have much control of his neck in certain positions. It is really helpful to know what to work on with him at home and to be purposeful when we play and interact with him.
Ears:
Luke is scheduled for ear tube surgery in 1 month. They will go in and first see if they can drain the fluid but making a tiny secession. If not, then the doctor will just go ahead and put the tubes in. The tubes then need 2 weeks to settle and heal before our audiologist will perform another ABR. The ABR test will determine if his hearing has improved. It would need to improve drastically to no longer consider cochlear implants. We are fairly certain that he will still need implants, and we would have his pre-operation meeting when he is around 6 months old. As far as how early they will perform the surgery is still up in the air. Everyone we have talked with said they'd like to move as quickly as possible. So it is possible he could have the implants as early as 7-8 months. This would be AMAZING!
We are doing well in the Julien household. We've had a busy week of work, school conferences for me, last night of swimming lessons, and a Canucks game for Stefan!! Thank you again for continually lifting up our family in prayers. We feel God's love so ever present in our lives. Love you all!!
:) MN Juliens
Luke had his first day of physical therapy down at Children's West in Minnetonka. Our PT is wonderful and she gave us lots of helpful activities and stretches to focus on with little Luke. Her main concern/focus is his neck. She said that due to him preferring the backwards C position the first 2 months of his life, his neck muscles are completely stretched out. He really doesn't have much control of his neck in certain positions. It is really helpful to know what to work on with him at home and to be purposeful when we play and interact with him.
Ears:
Luke is scheduled for ear tube surgery in 1 month. They will go in and first see if they can drain the fluid but making a tiny secession. If not, then the doctor will just go ahead and put the tubes in. The tubes then need 2 weeks to settle and heal before our audiologist will perform another ABR. The ABR test will determine if his hearing has improved. It would need to improve drastically to no longer consider cochlear implants. We are fairly certain that he will still need implants, and we would have his pre-operation meeting when he is around 6 months old. As far as how early they will perform the surgery is still up in the air. Everyone we have talked with said they'd like to move as quickly as possible. So it is possible he could have the implants as early as 7-8 months. This would be AMAZING!
We are doing well in the Julien household. We've had a busy week of work, school conferences for me, last night of swimming lessons, and a Canucks game for Stefan!! Thank you again for continually lifting up our family in prayers. We feel God's love so ever present in our lives. Love you all!!
:) MN Juliens
Sunday, March 23, 2014
Update
My brother and Maari also came for the weekend. We had a great time visiting.
Update on Mr. Luke:
Ears: Luke received his new ear molds on Thursday and they fit perfectly! No more squealing all the time. He's been able to keep them in all day now. Our audiologist took another timpani-gram, and it still came up flat (means that their is still fluid in the ear). We have an appointment next week with the nurse practitioner at Children's ENT clinic. From there, we will schedule tube surgery. Two weeks post surgery, he'll have another ABR performed to see if draining fluid has changed his hearing loss. Most likely, it will not change dramatically. Then, we can schedule his cochlear implants. As far as schedule, we are not sure exactly how soon they'll do his implants, but they do want to move quickly, which totally works for us!
PT: Luke starts his first round of physical therapy next week down at Children's West. We've already been working on his neck strength and stretching out his pectoral muscles and legs.
Genetics Testing: Our insurance approved the genetics testing, so they can go ahead check for 72 syndromes. If they find a match, this will give us some answers. It will allow us to know what to focus on. There is a strong possibility that they will not find a match. If this is the case, it will just be a surprise.
Luke continues to put on weight! He's over 9 lbs, and I'm excited to get his official weight next week at his 4 month check-up. He's feeding really well, and often sleeps straight through the night. Addie and James continue to be big helpers to their little brother and are always giving him LOTS of attention. :)
We are about to head out for a walk here in MN. I wouldn't call it warm today, but it's an improvement from the winter we've just survived.
Lots of love, The MN Juliens
P.S. On a side note, Addie starting reading this weekend! She had been really interested in sight words lately. She had checked out a bunch of Dick and Jane books from the library, and officially read through 2 of them. Pretty fun to watch!
Wednesday, March 19, 2014
Kindergarten Round-up
Addie starts kindergarten next year at Glen Lake Elementary School. We had the pleasure of going to her school for Kindergarten Round-Up last night. What a blast!! You can tell how excited she was to "practice" riding the bus!
Monday, March 17, 2014
Romans 8:25-26
Stefan and I were at Bible Study last night, and we were on our final night of Jim Cymbala's When the Spirit Moves study. The verse we were studying was from Romans 8:25-26.
"But if we hope for what we do not yet have, we wait for it patiently. In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express."
This verse spoke directly to me. Last week Tuesday, I felt this overwhelming presence, and trust me, it wasn't a good one. My heart started beating fast, I started crying, and I can only imagine that I was having a panic attack (never had one before). No matter how hard I tried, I couldn't fall back asleep. I got out of bed, not knowing what to do, and found myself face down on the kitchen floor. I don't remember what I prayed for, but I know I was crying. I just keep my head down until I felt that awful pressure and presence leave me. In return, God's spirit just washed over me, comforting me!
Through all of our trials, it has become very evident that Stefan and I are not in control. We never have been, but it has always felt that we were, somewhat! God has brought us to our knees. We know we cannot do it alone. We know that thinking about tomorrow and worrying causes too much pain and anxiety. He only asks us to trust in Him today. He specifically interceded for me last week. I was in too much pain to even know what to pray for. He already knew my pain, and knew my prayers. He just let me cry.
Thank you God for always loving us, for loving our children, and for being able to know, without a doubt, that you will never leave us.
Stefan and I still find ourselves grieving, and probably will for some time. But at least we are confident that all of this is part of God's great plan, and He WILL use Luke's life to glorify Him.
Luke continues to grow and it is truly a blessing to watch! He now weighs over 9 lbs. He gets his new hearing aids on Thursday and also has his first IFSP services. Thank you again for your notes, meals, kind words of encouragement and prayers. We feel so surrounded by love!
Love, The MN Juliens
"But if we hope for what we do not yet have, we wait for it patiently. In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express."
This verse spoke directly to me. Last week Tuesday, I felt this overwhelming presence, and trust me, it wasn't a good one. My heart started beating fast, I started crying, and I can only imagine that I was having a panic attack (never had one before). No matter how hard I tried, I couldn't fall back asleep. I got out of bed, not knowing what to do, and found myself face down on the kitchen floor. I don't remember what I prayed for, but I know I was crying. I just keep my head down until I felt that awful pressure and presence leave me. In return, God's spirit just washed over me, comforting me!
Through all of our trials, it has become very evident that Stefan and I are not in control. We never have been, but it has always felt that we were, somewhat! God has brought us to our knees. We know we cannot do it alone. We know that thinking about tomorrow and worrying causes too much pain and anxiety. He only asks us to trust in Him today. He specifically interceded for me last week. I was in too much pain to even know what to pray for. He already knew my pain, and knew my prayers. He just let me cry.
Thank you God for always loving us, for loving our children, and for being able to know, without a doubt, that you will never leave us.
Stefan and I still find ourselves grieving, and probably will for some time. But at least we are confident that all of this is part of God's great plan, and He WILL use Luke's life to glorify Him.
Luke continues to grow and it is truly a blessing to watch! He now weighs over 9 lbs. He gets his new hearing aids on Thursday and also has his first IFSP services. Thank you again for your notes, meals, kind words of encouragement and prayers. We feel so surrounded by love!
Love, The MN Juliens
Sunday, March 16, 2014
Thursday, March 13, 2014
The Julien brothers - matching swimming trunks
It is so sweet to watch James interact with his baby brother. You can tell he is in love. Sometimes he can hardly hold his emotions at bay. He loves holding and rocking him, singing him silly songs, laying down next to him, and his favorite part, is rubbing Luke's spiky hair! He's such a wonderful brother!
Monday, March 10, 2014
Joshua 1:9
"Have I not commanded you? Be strong and courageous. Do not be terrified;
do not be discouraged, for the LORD your God will be with you wherever
you go." - Joshua 1:9
This is one of our favorite verses from GT and the Halo Express, and has been stuck in my head all day. As we navigate these uncertain times, I am constantly reminded that we are not alone. I definitely felt His presence today with me during my first day back at work. I knew it was going to be emotional, but I also felt a sense of peace knowing that this would allow me to heal. I had pre-warned my teammates that I would probably cry before and after school, but that I would keep it together for my students. Seeing my wonderful co-workers and my amazing class of 6th graders was such a gift. I am so fortunate to be able to teach part-time and also spend part of my week at home with my beautiful kiddos. I was only able to go back this time around knowing that Luke and James were in such loving care. Our daycare provider Susie is a blessing. I know that she not only is good at what she does, but that she loves my children. When I came to pick the boys up today, I walked in and little Luke look straight at me. It's all I needed to make my day complete. :)
Right now we are in the process of trying to find a good family counselor. We got a couple recommendations and are always open for suggestions. We would love to find a Christian counselor who specializes in children with disabilities. Also, our pediatrician called tonight, and she put in a referral to start PT down at Children's in Minnetonka. It feels hopeful to start moving forward.
Again, thank you everyone for your thoughts and prayers! We continue to feel God's loving arms around us. We know that he purposely placed little Luke in our lives, and we are thankful that he entrusted us, Stefan and Betsy, to be his parents. Don't get me wrong, it's still really hard, really sad, and feels really discouraging at times! But we place our full trust and our hearts in our heavenly Father knowing that he has a greater plan for our life, and that plan is better than we could ever imagine. As long as we continue to trust, live for today and cast our worries to him.
Lots of love! The MN Juliens
This is one of our favorite verses from GT and the Halo Express, and has been stuck in my head all day. As we navigate these uncertain times, I am constantly reminded that we are not alone. I definitely felt His presence today with me during my first day back at work. I knew it was going to be emotional, but I also felt a sense of peace knowing that this would allow me to heal. I had pre-warned my teammates that I would probably cry before and after school, but that I would keep it together for my students. Seeing my wonderful co-workers and my amazing class of 6th graders was such a gift. I am so fortunate to be able to teach part-time and also spend part of my week at home with my beautiful kiddos. I was only able to go back this time around knowing that Luke and James were in such loving care. Our daycare provider Susie is a blessing. I know that she not only is good at what she does, but that she loves my children. When I came to pick the boys up today, I walked in and little Luke look straight at me. It's all I needed to make my day complete. :)
Right now we are in the process of trying to find a good family counselor. We got a couple recommendations and are always open for suggestions. We would love to find a Christian counselor who specializes in children with disabilities. Also, our pediatrician called tonight, and she put in a referral to start PT down at Children's in Minnetonka. It feels hopeful to start moving forward.
Again, thank you everyone for your thoughts and prayers! We continue to feel God's loving arms around us. We know that he purposely placed little Luke in our lives, and we are thankful that he entrusted us, Stefan and Betsy, to be his parents. Don't get me wrong, it's still really hard, really sad, and feels really discouraging at times! But we place our full trust and our hearts in our heavenly Father knowing that he has a greater plan for our life, and that plan is better than we could ever imagine. As long as we continue to trust, live for today and cast our worries to him.
Lots of love! The MN Juliens
Sunday, March 09, 2014
Home sweet home
At that moment, I knew that no matter what kind of pain Stefan and I were going through, Addie and James were going through the pain of watching their parents grieve. It is okay to grieve, but I realized that we have two other very fragile children who all they wanted was to be loved, right now. After everyone went to bed, Stefan and I talked, cried, and prayed for a long time together. God revealed that we can still grieve, but that we need to spend time, just as a family, holding on to that sense of normal.
Saturday morning, we woke up and made muffins and had a fun filled morning of play time. Undivided family attention. Just what the doctor and God ordered. :)
Saturday afternoon our wonderful friends organized a lunch and playdate and just surrounded us with love. They were there to simply listen, not to fix, or give advice, just to be there with us. It is such a blessing to know that we get to do life with these friends. They then sent us home with a ton of meals! That night we got together with my side of the family for Mimi's birthday. Again, so wonderful to be surrounded by love.
Stefan and I are continually amazed at how God has and is specifically placing certain people into our lives for a reason. Every person we were in contact with the past 3 days was not only a Christian, but a strong one: our wonderful nurse, pediatrician, neurologist, speech pathologist, special education teacher, the deaf organization leader that came to our house, etc. They not only comforted us, but were able to back up what we already knew. God placed Luke into our lives on purpose, for a reason he chose our special family and through all of this He will be glorified. We are so uncertain of our future, but cling to the hopes of today. God commands us not to worry about the future, but to know that he is here, right now, walking right along side of us!
Thank you all for your prayers and thoughts. We ask more than ever, that you surround our family with prayers. I head back to work tomorrow and little Luke off to Susie's. :) We prayed long and hard, and I know that teaching and having a sense of routine in our lives right now is a good thing. Luke will be so well loved and stimulated. I have such an amazing team at my school and know that they will be there for me and help my transition back to work go well.
Lots of love to all of you from balmy Minnesota!
Love, The MN Juliens
Thursday, March 06, 2014
Luke's brain
He said it is hard to predict what the future holds. Luke will have delays. In either specific areas or in all. He said there will be a limit on how much he will be able to do. As far what he actually does, we will have to wait and see. Again, we are back to that wait and see.
I've finally realized that I can no longer bargain with God. It isn't, "Please God don't give me anything more," or "Please let this be all," or "Please God let Luke's hearing loss be okay later on." Instead, it is, "Luke is yours Father. You are in complete control. May your will be done. Thank you for him."
Stefan and I are completely back into that first stage of grief. We are saddened, by this change in our plans, and are really sad that Luke may not get to experience life like a normal kid. Satan is at work, and I ask for your prayers that all his evil thoughts be banished from us.
I know that our heavenly Father has a wonderful plan for our special family. That he pre-selected Stefan and I to be Luke's parents, and that he chose wonderful siblings like Addie and James to do life along side Luke.
We ask that you continue to lift up our family with prayers.
Love,
The MN Juliens
Agensis of the Corpus Callosum
The MRI showed that Luke's Corpus Callosum never connected. This is the part of the brain that connects the right side with the left side. This diagnosis is a wait and see game. There are some patients that never knew they had this until having an MRI later in life, and then on the opposite end, developmental delays.
Even though we have answers now, the answer leaves us feeling very sad. Sad is putting it mildly. We were distraught. The evil one kept putting all kinds of negative thoughts into our heads last night. It's easy to go down that road, so instead we just kept praying all evening. Asking God to give us peace, asking God to watch over little Luke, and most importantly, thanking Him for the blessing that our little one is to us.
Luke is such a strong, tough little guy! We ask that you continue to lift our family up in your prayers. At this point we are meeting with our neurologist soon, and then it's back home to just enjoy and watch Luke grow and develop.
With much love, The MN Juliens
Even though we have answers now, the answer leaves us feeling very sad. Sad is putting it mildly. We were distraught. The evil one kept putting all kinds of negative thoughts into our heads last night. It's easy to go down that road, so instead we just kept praying all evening. Asking God to give us peace, asking God to watch over little Luke, and most importantly, thanking Him for the blessing that our little one is to us.
Luke is such a strong, tough little guy! We ask that you continue to lift our family up in your prayers. At this point we are meeting with our neurologist soon, and then it's back home to just enjoy and watch Luke grow and develop.
With much love, The MN Juliens
Wednesday, March 05, 2014
Recovery
The MRI results may possibly be done later on tonight. The doctor on-call will keep us updated. The anesthesiologist said nothing major showed up on the MRI, but they send it out to the radiologist to do a more in-depth analysis.
Thank you everyone for your prayers. Stefan is going home to be with Addie and James and I'm staying over w/ Luke tonight, as he needs to be monitored for 12 hours after sedation.
Lots of love, The MN Juliens
Psalm 136
As I write this entry, Stefan and I are anxiously waiting in the family room down at Children's Hospital. A nurse just came out to let us know that they just did his circumcision fix, and are now just starting his MRI. It will take about an hour (which seems like an eternity on our end).
I went to read my devotional for the day, and it was "Give thanks to the Lord, for he is good. His love endures forever." - Psalm 136.
God knows exactly what we needed to hear right now. And that was, we need to praise him. For who he is. For sending his one and only Son, to save us and for allowing us to have the Holy Spirit. Our Bible Study is studying the Holy Spirit right now. On Sunday, our main topic was our prayers and how they should be praise filled, even before we God reveals the outcome. Our God is good no matter what the outcome. This morning, our dear Addie asked, "Mommy, what happens if God doesn't answer our prayers?" I was able to share that God's plans are perfect, and even though it may be disappointing, he promises to love and always be with us, and that he works all things for the good of those who love him.
Stefan and I are able to praise God, right here, right now. For the blessing that Luke is in our life. Our prayers are also that everything on his MRI check out. This is our desire. And we can trust that God does know the desires of our heart and hears our prayers.
Thank you everyone for your prayers today! Lots of love, The MN Juliens
 |
| Pre-MRI. He was not happy and VERY hungry. His last feeding was at 3:30am, and he didn't go under until 11:15am. He'll be a hungry little man when he wakes up! |
I went to read my devotional for the day, and it was "Give thanks to the Lord, for he is good. His love endures forever." - Psalm 136.
God knows exactly what we needed to hear right now. And that was, we need to praise him. For who he is. For sending his one and only Son, to save us and for allowing us to have the Holy Spirit. Our Bible Study is studying the Holy Spirit right now. On Sunday, our main topic was our prayers and how they should be praise filled, even before we God reveals the outcome. Our God is good no matter what the outcome. This morning, our dear Addie asked, "Mommy, what happens if God doesn't answer our prayers?" I was able to share that God's plans are perfect, and even though it may be disappointing, he promises to love and always be with us, and that he works all things for the good of those who love him.
Stefan and I are able to praise God, right here, right now. For the blessing that Luke is in our life. Our prayers are also that everything on his MRI check out. This is our desire. And we can trust that God does know the desires of our heart and hears our prayers.
Thank you everyone for your prayers today! Lots of love, The MN Juliens
Monday, March 03, 2014
Smiles, smiles, and more smiles
What a wonderful moment that I'll never take for granted anymore! Seeing Luke smile, real smiles, over and over!! After a VERY long morning nap (he's in the midst of a cold), I fed him and then put in his hearing aids for play time. I was singing songs, in a very low voice, and he broke into multiple smiles. They kept coming! Grandma, James, and Addie were all able to see his smiles as well. :)
Our friend Jessie also graciously came over this afternoon to do a quick assessment and give PT tips to me. It was great to go over neck muscle and arm/leg muscle tone exercises. Thank you Jessie! We are so blessed to have wonderful, smart PT friends! :)
Our friend Jessie also graciously came over this afternoon to do a quick assessment and give PT tips to me. It was great to go over neck muscle and arm/leg muscle tone exercises. Thank you Jessie! We are so blessed to have wonderful, smart PT friends! :)
Subscribe to:
Posts (Atom)