Sunday, March 23, 2014

Update





Nana and Papa came for a 4 day visit! It was wonderful to see them again and as always, we were blessed by their visit.  :)

My brother and Maari also came for the weekend.  We had a great time visiting.

Update on Mr. Luke:

Ears: Luke received his new ear molds on Thursday and they fit perfectly! No more squealing all the time.  He's been able to keep them in all day now.  Our audiologist took another timpani-gram, and it still came up flat (means that their is still fluid in the ear).  We have an appointment next week with the nurse practitioner at Children's ENT clinic.  From there, we will schedule tube surgery.  Two weeks post surgery, he'll have another ABR performed to see if draining fluid has changed his hearing loss.  Most likely, it will not change dramatically.  Then, we can schedule his cochlear implants.  As far as schedule, we are not sure exactly how soon they'll do his implants, but they do want to move quickly, which totally works for us!

PT: Luke starts his first round of physical therapy next week down at Children's West.  We've already been working on his neck strength and stretching out his pectoral muscles and legs. 

Genetics Testing: Our insurance approved the genetics testing, so they can go ahead check for 72 syndromes.  If they find a match, this will give us some answers.  It will allow us to know what to focus on.  There is a strong possibility that they will not find a match.  If this is the case, it will just be a surprise. 

Luke continues to put on weight! He's over 9 lbs, and I'm excited to get his official weight next week at his 4 month check-up.  He's feeding really well, and often sleeps straight through the night.  Addie and James continue to be big helpers to their little brother and are always giving him LOTS of attention.  :) 

We are about to head out for a walk here in MN.  I wouldn't call it warm today, but it's an improvement from the winter we've just survived.

Lots of love, The MN Juliens

P.S.  On a side note, Addie starting reading this weekend!  She had been really interested in sight words lately.  She had checked out a bunch of Dick and Jane books from the library, and officially read through 2 of them.  Pretty fun to watch!


No comments: