Luke's brain

This might be the most challenging blog entry to write. On one hand, to finally know what is wrong with Luke's little body is a huge relief.  But on the other hand, it comes with heartache.  We spoke with the neurologist this morning.  At this point, the lack of Luke's Corpus Callosum seems trivial.  The main concern is Luke's lower part of his brain is small and this empty space is filled with a large amount of fluid.  You can see the above scan, where the black is, is where brain matter is missing and the fluid has filled the void.

He said it is hard to predict what the future holds.  Luke will have delays.  In either specific areas or in all.  He said there will be a limit on how much he will be able to do. As far what he actually does, we will have to wait and see.  Again, we are back to that wait and see.

I've finally realized that I can no longer bargain with God. It isn't, "Please God don't give me anything more," or "Please let this be all," or "Please God let Luke's hearing loss be okay later on."  Instead, it is, "Luke is yours Father.  You are in complete control.  May your will be done. Thank you for him." 

Stefan and I are completely back into that first stage of grief.  We are saddened, by this change in our plans, and are really sad that Luke may not get to experience life like a normal kid.  Satan is at work, and I ask for your prayers that all his evil thoughts be banished from us. 

I know that our heavenly Father has a wonderful plan for our special family.  That he pre-selected Stefan and I to be Luke's parents, and that he chose wonderful siblings like Addie and James to do life along side Luke.

We ask that you continue to lift up our family with prayers.

Love,

The MN Juliens