Thank you everyone for your prayers this past week. It was a long 8 days and 7 nights that Luke spent in the hospital, and we are so thankful to have everyone back home!! J-tube feedings have been going great. Stefan and I are quickly learning the tricks of a successful tube feeding.
We would appreciate continued prayers for Luke's tummy. He has been vomiting at least 1 time a day, often 2 or 3 times. I called the on-call GI doctor today and he said this is normal. Because Luke does not have food in his belly, his stomach bile and saliva all mix together and are causing him real discomfort. We were taught to vent or "air-out" his tummy 1 time a day (open his G-tube and just let it drain). That is proving not to be enough. Today I opened his G-tube and vented his tummy 3 times, and he still vomited 2 times. He feels so much better once he is done, we just feel so bad that he is throwing up. We pray that with time we will be able to figure out the perfect venting time that our little guy needs.
It was fun to have family time together! This morning we did the Epilepsy walk through Upsher-Smith Labs at the MOA. What a great cause, and what a blast! The kids favorites were riding on the rides, walking, eating purple cupcakes, and being able to take home a HUGE bucket of Legos.
Lots of love to you all,
The MN Juliens